Websites with Congenital Heart Information
American Heart Association
http://www.americanheart.org/
This site provides general information about the heart, posts the warning signs for heart attack and provides reference guides to healthy diet.
Cincinnati Children’s Hospital Medical Center
www.cachnet.org
This site has excellent graphics to explain pediatric heart conditions and problems: signs, symptoms, diagnoses and treatments.
Congenital Cardiac Centre for Adults
www.cachnet.org
This site is the Internet home page for the Canadian Adult Congenital Heart Network.
Congenital Heart Disease
http://www.med.umn.edu/radiology/cvrad/chd/chd.html
The main source for this site is Radiology of Congenital Heart Disease. It is an excellent tutorial that provides detailed explanation of different heart malformations.
Children’s Health Information Network-Congenital Heart Diseases
http://www.tchin.org/
This site provides extensive information for families of children with congenital and acquired heart disease, adults with congenital heart defects, and professionals who work with them.
The Children's Heart Foundation
http://www.childrensheart.com
The CHF was founded in 1996; their mission is to fund research in congenital heart defects. So far they have awarded over 1 Million dollars to various institutions. The Florida Chapter President and one of John Kirklin's AV Canal repair patients is 30 years post op and doing well.
Children’s Heart Society
http://www.childrensheart.org/
This is a non-profit, non-government funded charitable organization, completely operated by volunteers and support families of children with heart disease. It offers inspiration and awareness.
Congenital Heart Disease Online Handbook
http://www.execpc.com/~markc/congenit.html
The handbook contains the list of congenital heart diseases, each with medically accepted abbreviation as well as a short description and a link for more details.
The Congenital Heart Library
www.achd-library.com
This site has medical information and pictures of many of the congenital heart conditions.
Curious Heart.com
http://www.curiousheart.com/
This organization is committed to offering quality education about heart disease, the prevention and treatment of heart disorders, and other general health information.
Heart Kids of SA Inc.
http://www.heartkids.org/
Heart Kids of SA is a support group formed in South Australia in 1987. It offers comfort and support to families who have a child who is born with congenital heart problems. It provides discussion groups, real life stories and e-mail to contact the organization itself.
Heartz "R" Us
http://www.members.tripod.com/~Davey_4/index-3.html
Davey is an adult that has been living with a complex heart disease for the past 4 decades. He talks about his surgeries and life overall. It is very useful information for heart children and their families.
Little Hearts: A Support Network for Parents of Children with CHD.
www.littlehearts.net
This is a non-profit organization that provides support, resources, and hope for the parents of children living with a congenital heart defect.
PediHeart
http://www.pediheart.org
This is an excellent site for parents and children. It offers information about the heart as well as heart defects. It provides links and allows you to ask questions.
Syndromes and Disorders
http://www.bamdad.com/sheri/disorder.html
This is an excellent source of specific heart disorders, syndromes and procedures. It provides links for each disorder with detailed explanation.